A week after surgey

It amazing the people u meet as u are going through ur journey as a mom wth a child that has CHD.. My walk has been amazing 7 and 1/2 years and  when i believe i have learned all i could learn God sends someone else across my path. Treshawn had is surgery last Wednesday at the Cleveland Clinic. When we arrived i  meet this mother of a 5 year old little girl who had surgery nine days earlier. This little girls smile could brighten up the whole room. She was very nice and so was her mother.. Her mom said this was her fourth surgery and this was the shortest stay she had ever had in her life in the hospitial. Latter on she came down to the waiting room where were at to give me a hug good bye.

It the look in our eyes and the love we have that is like an understanding between heart mom. Sometime u don t have to say a word but just look at each other and understand more then words can explain. Also on this journey i meet another mother whose child had been there for 2 months and she had almost lost him twice.. To a point where the doc told her to hurry up and come and say r goodbyes. Wow. Me and her talked for about an hour while tre was having his surgery. We talked about God and how good he is. She has a journey a head of her beacuse her son can not eat right know and he was leaveing that day to theraphy..

For Tre his surgery was 4 1/2 hours and he was intensive care for 20 hours and then we moved to the step down unit. His surgery went really well he had his pulmnary valve replaced and his artery open up. The whole time i prayed that my son would be home on Saturday of that week. He came home saturday 4 days after his open heart surgery. He did amazing. He was smiling and playing his Ds the next day after surgery as he told everyone he would be ..  He is home on some meds but should be off of all of them in next few weeks except for asprin. Which he has to take for 3 months. He is at home with a smile on his face and laughing and that all i asked for for christmas....

The day i left i meet this amzing 8 year old little boy. He is need of a heart transplant and has been in the hospitial for 10 months. He is using a machine that is acting as his heart right know untill he can get a new heart. This little boy had such a big smile on his face. He is on this machine 23 hours a day and only off of it for 30 minutes every 6 hours. When he is off it u can see him dancing to Micheal Jackson..... He made me smile so much... he seen me with my baby and asked could i bring him in so he could hold him. I said yes. He was unable to hold him but i was able to place him in his lap for a few minutes which made Him smile from ear to ear. My son jayvon touched someone at 2 months and he didn t even realize it. I pray this little boy gets a heart soon so he can go home and play...

I will close with this thank u all  for so many prayers for my son and thank u for opening my eyes each an everyday. Life as a chd mom is like a rollercoaster but i would never trade it in because i know that God will walk me through each and every moment and carry at the times i need to be carried...

Love always
charm

Through the eyes of my child...

Treshawn is doing amazing a very bright young man that God has blessed me with. He has open my eyes lately to things that i thought i new and understood. He reminds me how faithful God is in my life more and more. He doesn't like to go to bed unless u pray with him and if u forget he will remind you. The other day he got his holidays messed up he told me that Jesus died on his cross for Christmas. I had to tell him that was the day God was born, but he was very stubborn with it until he latter just said he died on the cross for us. And i said yes. We went to see a dear old teacher friend of mind yesterday and he told her that Jesus died on the cross and she said he sure did. Then he told her he was having surgery and he was going to be just find... He was coming out and going to play his Ds. This brought tears to my eyes because i knew God was just giving me confirmation and it was great to hear it from my child. I say a child will lead you and teach u if u are willing to listen. As i am typing my child comes to me and says what i am thankful for and i said him. He says and his siblings and i say yes... I believe that  each child teaches u something different and with four of them i am going to learn and grow a lot.. As a heart mom u have  a lot of times when you are brought to your knees and there is nothing the world i would change.. Because God gave me one his precious angels and i thank God for all of  my precious angels everyday. 

Sincerely
charm and Tre

a month

a Month from today Tre will have his 4th open heart surgery. Wow i didn't think i would be going through this yet.. I have faith in God and know he will do good.. But i have so much to do before hand... Explaining it to my 4 year old is the hardest. I don't think he understands and they r best friends...

Heart surgery

So last week we found out Tre will be having his 4th open heart surgery in December.. At first it was a shock and i cried a lot. But i knew this was coming but i guess i was expecting it for next year not this year. Many people keep asking how i am.. I am doing a lot better i just have a lot to do before his surgery. This is the first surgery where we have 4 kids and a puppy. Thank God a friend is going to keep Tre's puppy which tre is upset about but i keep telling him she will be back as soon as he comes home. We also had to arrange with the school for at home tutoring and child care for 2 of the three kids cause the baby has to come with us. As a heart mom we are strong but we do have our moments when we need to cry or a hug. It's not that i am weak it is just that i am human. There also time when we have to pray for strength and try not to let our kids see us crying so they don't worry..

Life

Tre had a full repair when he was 10 months old and his first cath at 2 years old because he was not gaining wait. Come to find out he had an aneurism on his heart from the patch being to big when they did the full repair and he had a narrowing where the shunt had been.. So he had to have another open heart surgery a week latter. At the time we also found out we were having another child. So Tre became a big brother a couple months after his third open heart surgery and he has been a great big brother. Tre ended up with another cath in March of 2008 and another one in August of 2009. He is know looking at his 4^th open heart surgery in December of this year..
Tre over the years has become a big brother to 3 siblings and has been very active and a loving child he is know in 2^nd grade and doing great. He has taught me so much over the years and he loves God. He loves to go to church and to pray every night.. He can climb walls and he loves spending time with his siblings and his new puppy… He is a little behind in school because of the surgeries but is making great progress… I thank God for giving me such a wonderful Child…

The Begining

Were to begin my story. I guess at the begin would be the best . I have read many people blogs on there children and how they found out while they were pregnant that they were becoming a heart mom. Well not me… I had a typical pregnancy I was a week over due when I went to the doctor and asked could I be induced.. He told me if the baby was not here by next Wednesday then I could be induced then. Well before he sent me home he wanted me to be on the monitor for an hour. Well the baby heart was fluctuating so he told me that they were going to induce me that day. Put a long story short after 3 days of labor and no baby they decided on a emergency c- section. Treshawn Isaiah Johnson came in the world at 7:36 pm on May 4, 2003. He stayed in the delivery room with me for about and hour and then. She said she was having issues getting his pulse and wanted to take him up to the nursery, as I was coming out of recovery. They were coming down the hall saying he need to go to intensive care. They think something was wrong with his heart. At 8 am that next morning they came in saying my child need to be taken to Cleveland Clinic because he needs surgery he had a hole in his heart. I said not without me. So they transferred us both with in an hour that were I learned he had tetralogy of fallot. He was going in for his first open heart surgery the next morning. At 2 day old my son had his first open heart surgery to put a shunt in.. He was in the hospital for 11 days .. I swear the day Tre was born he taught me how to pray. I thought all my life that I knew how to pray but I was wrong. I also learned a lot about myself that I was stronger then I thought.